Eyes

Vision is very often affected in APS patients as the eyes are so closely linked with the brain.

Visual disturbances can take the form of:

  • flashing lights
  • zigzag patterns
  • seeing ‘stars’ or ‘dots’
  • blurred vision
  • double vision
  • loss of vision 

Flashing lights, zigzag patterns, seeing ‘stars’, and blurred vision tend to accompany the headaches and migraines which are common in APS patients but can also sometimes happen independently. It is more likely that these symptoms will occur in both eyes.

Double vision and total or partial visual loss can result from clots on the brain or optic nerve and are also sometimes caused by a decreased blood supply to the eye. These symptoms usually occur in one eye only. Sudden visual loss can be transient and involve the loss of one-quarter or one-half of the field of vision, but it can also lead to acute blindness in one eye in extreme cases.

APS patients can occasionally develop optic neuritis. Optic neuritis is inflammation of the optic nerve, and it too may cause sudden, reduced vision in the affected eye. Other symptoms include loss of colour vision and pain when the eye moves. The exact cause is unknown, but sudden inflammation of the nerve connecting the eye and the brain (optic nerve) can injure the insulation (myelin sheath) surrounding each nerve fibre, causing the nerve to swell.

People who also have Sjögren’s syndrome will often have dry, itchy eyes. Other symptoms of Sjögren’s can include a burning or stinging sensation in the eyes, irritated and swollen eyelids and sensitivity to light (photophobia).

Diagnosis and treatment

APS is usually diagnosed from a combination of a positive blood test and symptoms. If you are under 50 and have suffered a thrombosis, or have had more than one pregnancy loss, you should discuss with your doctor whether you need blood tests.

Related conditions

Some people with APS will also have other autoimmune conditions, as may their family members. APS has been linked with many other autoimmune conditions, including rheumatoid arthritis, lupus, Raynaud’s phenomenon, and Sjögren’s syndrome.

Newly diagnosed

Receiving a new diagnosis of APS can be frightening, and no doubt you will want to know exactly what APS is. Following this, you will likely have a great many more questions to ask about the condition and how it can affect you. We are here to help!

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Our mission is to achieve earlier diagnosis and offer support to anyone affected by antiphospholipid syndrome (APS) through awareness, education and research.

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