Who we are

Our mission is to achieve earlier diagnosis and offer support to anyone affected by antiphospholipid syndrome (APS) through awareness, education and research. APS is a significantly under-recognised and under-diagnosed condition; our charity is determined to raise the profile of APS wherever possible.
 
Although APS is now estimated to affect around 1 in 100 of the population, because it is relatively new in medical terms, much research still needs to be carried out so we can learn more about the causes, effects and treatments for the condition; one thing we do know is that early diagnosis of APS is crucial for patients.
 
APS Support UK is a small charity that punches well above its weight, and we have achieved a lot so far. However, we need your help to be able to continue awareness campaigns and research so that people do not suffer unnecessarily. We do not receive any government funding and rely almost entirely on voluntary donations and legacies to fund our work.

Our mission

 

  • raising awareness of APS in the medical community
  • offering information and understanding to anyone affected by APS
  • supporting research into APS

Our Trustees

 

The charity is very grateful to all the trustees for their support and guidance with the charity and its work.

Estelle Morris (Chair)

Professor David D’Cruz (Medical Vice Chair)

Chris Mansbridge

Professor Anisur Rahman (Medical Vice Chair)

James Turner (Treasurer)

Dr John Wolffe

The Medical Vice Chairs

 

Professor David D’Cruz

Professor David D’Cruz is a consultant rheumatologist. He trained at St Mary’s Hospital Medical School in London and qualified in 1983. His major clinical and research interests are systemic lupus erythematosus, the antiphospholipid syndrome and systemic vasculitis. He is actively involved in clinical research projects including new therapies for SLE and Vasculitis. Professor D’Cruz has published numerous scientific articles and book chapters and is one of the managing editors of the journal Lupus and is editor in chief of the Journal of Autoimmune Diseases.

 

Professor Anisur Rahman

Professor Anisur Rahman qualified from Oxford in 1988 and trained in rheumatology in London. He began to build up his own research group in 2000 when he was appointed as a Senior Lecturer at University College Hospital London. He was awarded the Michael Mason Prize for this research by the British Society of Rheumatology in 2004, and was promoted to a personal chair in rheumatology in 2008. Professor Rahman became interested in autoimmune rheumatic diseases after completing a PhD on systemic lupus erythematosus and antiphospholipid syndrome and now has a research group looking at those diseases. He is also on the national committee responsible for the development of patient information leaflets produced by the charity Arthritis Research UK.

The Team

 

  • Kate Hindle – Manager
  • Nancy Dalley – Digital Media Assistant (Contractor)
  • Clare Smith – Admin Support Officer

Diagnosis and treatment

APS is usually diagnosed from a combination of a positive blood test and symptoms. If you are under 50 and have suffered a thrombosis, or have had more than one pregnancy loss, you should discuss with your doctor whether you need blood tests.

Related conditions

Some people with APS will also have other autoimmune conditions, as may their family members. APS has been linked with many other autoimmune conditions, including rheumatoid arthritis, lupus, Raynaud’s phenomenon, and Sjögren’s syndrome.

Newly diagnosed

Receiving a new diagnosis of APS can be frightening, and no doubt you will want to know exactly what APS is. Following this, you will likely have a great many more questions to ask about the condition and how it can affect you. We are here to help!

About us

Peer Review Panel

Consisting of APS medical professors and a patient representative, our panel reviews the relevance, originality and impact of applications.

We need all of the support that we can get

Why not join us and help make a difference?