Resources

We have provided the following free factsheets about different aspects of APS for you to either download, print or share.

This factsheet series has been compiled by APS experts and healthcare professionals. Special thanks to Professor Beverley Hunt from Thrombosis UK  who helped produce the Fact Sheets on Antiphospholipid syndrome and women’s health and Travelling with APS.

If you find our Fact Sheets useful, please consider making a donation so that we can continue with our work.

What is antiphospholipid syndrome and how can it affect you?

What are the symptoms of antiphospholipid syndrome?

How is antiphospholipid syndrome diagnosed?

Antiphospholipid syndrome: treatment and medication

Talking to your doctor: how to get the best from your consultation

Visiting the dentist when you have APS

Going into hospital when you have APS

Medical identification: what to carry in case of emergency

Associated conditions: the autoimmune family of disorders

Antiphospholipid syndrome and women’s health

How to inject yourself with heparin

INR and self-testing with APS

Driving with antiphospholipid syndrome

APS: employment and benefits

Family and friends: helping people understand APS

Travelling with APS: advice and tips

 

Leaflets

We have produced the following leaflet for you to download or print. If you would like us to send you copies, please email us.

An introduction to APS and how APS Support UK is trying to help

Posters

Please download and print our APS poster to raise awareness at your workplace or fundraising event:

Are you aware of APS?

Click below if you would like to download the Welsh language version of the APS awareness poster,

Ydych chi’n ymwybodol o APS?

If you would like us to send you copies, please email us.

Donate by Post/Gift Aid

Please note that we can only claim tax on donations from personal banks or building society accounts. We cannot claim Gift Aid on donations made from company accounts.

Gift Aid is a government scheme that enables charities to claim the basic rate tax made on donations. This means that we can currently increase your donation by 25%, and it won’t cost you a penny more! So if you are a UK taxpayer, please remember to choose the Gift Aid option so your donation can go even further.

Please click here to download our Gift Aid donation form.

GP Flyer

We are asking for APS patients to help with our education campaign. We have produced a GP flyer that you can download and take along to your GP the next time you visit:

Click here to download the GP flyer.

Please do not make a specific appointment – they are busy people – or drop it into the surgery as it will probably end up in the bin! Just remember to take it along if you have reason to visit and ask your GP to take time to look at the APS online course and encourage practice partners to do the same.

Leave a Gift in Your Will

Codicil download

Step-by-Step Will Planner download

Types of Legacy Pledges download

Sample Clauses and Wording download

Media Volunteer Questionnaire

One of our charity’s main aims is to raise awareness of APS – both amongst healthcare workers and the general public. We believe that increased awareness will result in earlier diagnosis and improved treatment for people with the condition.

Media volunteers are vital to our awareness campaign as they illustrate how APS can affect the lives of real people.

Your story or ‘case study’ could be told in a variety of different forms including medical journals, your local newspaper, a national newspaper, magazines, radio or even television. In most cases, the interview will consist of a chat on the phone with a journalist who will probably ask for a photograph to be emailed.

Your personal information will be held on a secure database, and will not be made available to anyone without your permission beforehand. We never share your data with any third parties, including other charities. You can ask us to remove your information at any time, and you are not committed to taking part in interviews we may contact you about.

Patients are the most valuable resource we have for raising awareness of APS and all case studies are interesting; the more we have, the better we can highlight the different issues caused by APS.

So, if you would be happy to take part in our awareness campaign and share your story, please complete and return this questionnaire and also give a brief account of your experiences including anything important you think we should know.

Merry Fundraising

Editable Invitation download

Christmas lights poster download

Mulled Wine and Mince Pies poster download

Carol Singing poster download

Christmas Quiz poster download

Christmas Jumper poster download

Festive baking poster download

Subscription Form

If you want to subscribe by post, please download this online form, complete and return it to us at the address shown on the form.

This section provides you with links to related APS websites. We must stress that we are not responsible for the contents of the pages contained in these external sites. Please contact us if you would like any new websites adding.
 

Living with APS

Counselling Directory – find a counsellor near you

Benefits and work: guides you can trust

Disabled and reduced mobility Airport Guide

MediPAL – Medical ID/Emergency card

NHS Choices – information on antiphospholipid syndrome
 

Lupus sites

Alliance for Lupus Research

Healthline’s Visual Lupus Tool

Lupus Foundation of America

Lupus UK
 

Migraine sites

National Migraine Centre

The Migraine Trust
 

Pregnancy

Action on Pre-eclampsia

Baby Lifeline

CHANA: facing infertility

MAMA Academy

The Miscarriage Association

SANDS – stillbirth and neonatal death charity

Tommy’s Miscarriage Information and Support
 

Strokes

The Brain Charity

Different Strokes

The Stroke Association
 

Thrombosis

Thrombosis UK
 

Related charities

APS Foundation of America

British Heart Foundation

British Sjogrens Syndrome Association

British Thyroid Association

Dutch APS Group

ITP Support Association

Louise Gergel Fellowship

Postural Tachycardia Syndrome (PoTS)

Scleroderma and Raynaud’s UK

SAF España

Versus Arthritis – antiphospholipid syndrome
 

Sites of interest

APS ACTION – international network

DVLA – list of medical conditions which can affect driving
 

Online APS support communities

APS Support UK Facebook page

APS Foundation of America: Friends and Family

APS Foundation of Australia Facebook page

Antiphospholipid Syndrome (APS/Lupus Anticoagulant) on Facebook

Antiphospholipid Syndrome in the UK on Facebook

Antiphospholipid Syndrome Sufferers and Supporters on Facebook

Antiphospholipid Antibody Syndrome on Facebook

Antiphospholipid Antibody Syndrome, supporting each other on our journeys on Facebook

APS Awareness USA support group on Facebook

Australian and NZ antiphospholipid support group on Facebook

Antiphospholipid syndrome (APS) on Facebook

Mumsnet

Daily Strength Antiphospholipid Syndrome Support Group

German APS Support Group

Sindrome Antifosfolipido México on Facebook